kidsSTRONG seeks to dramatically improve the quality of life for children with life threatening medical conditions and their families by enabling and accelerating Family-Centered Care innovation, best practices and standards though patient empowerment and community alliance.
Today, widespread support for childhood cancer is fragmented and uneven. There is minimal attention on childhood cancer research and many disaggregated sources of information and knowledge. But, on a broad scale, there is no one organization really focusing on impacting and improving the childhood cancer survivor experience. kidsSTRONG seeks to end the isolation, stop the hopelessness and improve the outcomes, by addressing the vast support disparities across the child/family cancer experience.
We believe that a model of improved communication, collaborative decision-making and access to critical care information among healthcare providers, family caregivers, patients and community support organizations results in trust and improves the overall practice of patient care and quality of life.
Therefore, we measure the kidsSTRONG brand and Alliance on two dimensions we believe are critical to demonstrating the power of leadership and transformative change:
Our ventures seek to touch the lives of many children and their families, such that scale of their operations begins to approach the scale of the demand from all survivors and communities. Collectively, the kidsSTRONG Alliance seeks to serve more than 20% of the childhood cancer survivor population, giving our children, their families and our partners a real voice in pediatric healthcare reform and the ability to influence systemic change.
Quality of Life:
Maintaining a high quality of life is a vital objective of treatment for all childhood cancer survivors and a precursor to effective healthcare scale. So, while it is important that our entrepreneurs address scale requirements in childhood cancer, they must all focus first and foremost on providing holistic interventions that promote family well-being across physical, emotional, social, spiritual and school dimensions as measured by a health-related quality of life assessment. By doing so, they create powerful proof points for new family-centered care model and innovative approaches to closing the gaps.
Additionally, each of our programs is designed with specific outcomes in mind that address key care challenges for children affected by cancer. Examples of such outcomes are:
Increase in collaborative cancer research leading to innovative cures and quicker access to cures
Decrease in Late Effects associated treatments
Decrease in child mortality
Development of a National Childhood Cancer Registry
Increased connection with others, improved social emotional well being
Increased capacity and improved health among caregivers
Family Centered Care and wellness prioritized in key target markets
Increase in self/family efficacy for cancer disease self/family management
Bilingual Education Support